FRONTOTEMPORAL DEMENTIA · FTD
You are not alone in this.
How to take care of your loved one without losing yourself.
When someone you love is diagnosed with frontotemporal dementia, the world changes in a moment. I built this site to walk the road with you — with information that makes sense, advice from one caregiver to another, and material that will steady you rather than frighten you.
Download the free guide «What is frontotemporal dementia?»A warm, readable guide — no medical jargon, no panic.
Where would you like to start?
Pick the place that fits where you are today — and know that you don't have to read everything at once.
“We've just had the diagnosis”
The first days after a diagnosis are among the hardest. Here are the first practical steps, what to ask the doctor, and what to expect from here on.
Start here →“I'm already a caregiver”
If you look after a loved one every day, this is where you'll find communication tools, strategies for the hard moments, and material for your own wellbeing — because the caregiver needs care too.
See the resources →“I want to understand FTD”
A complete, readable guide to frontotemporal dementia — its types, its symptoms, how it progresses, and how it differs from other forms of dementia.
Learn more →Why I created FTD Help
There is good information about frontotemporal dementia in English — from the specialist associations, the research centres, the institutes. I read all of it, and I'm grateful for it. But it is written by organisations. It tells you what FTD is. It doesn't tell you what to do at two in the morning when the carer you trusted has vanished without a word, or how the way a family behaves quietly changes the care their loved one receives in a home.
That gap is what led me here. I created FTD Help to be what I would have wanted for myself — a place with information written with warmth and respect, tools that actually work in everyday life, and the reminder that you are not alone on this journey.
Everything here is written by one principle, borrowed from the free guide:
The point is to inform you, not to overwhelm you.
Start with the free guide
«What is frontotemporal dementia?»
In a few clear pages you'll understand:
- Why dementia doesn't always mean memory loss — and how FTD differs from Alzheimer's disease.
- The behavioural variant (bvFTD): why the personality changes while your loved one's feelings for you do not.
- The three forms of primary progressive aphasia, in plain words — and why thinking stays clear.
- The movement forms (PSP, CBD) — and what can slow their progression.
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You don't have to work this out alone.
Whatever your next step is, start with the free guide. It's the simplest way to make sense of the big picture — and to take the first deep breath.
Download the guide, free